September 28.2



Thank you to the lovely staff, technicians and doctors at the University Colorado Cancer Center. (Hope you all enjoyed the cupcakes!)


This was one course Joshua was more than happy to graduate!


I’d like to give a shout out to the Bakery staff at the King Soopers on Red Cedar Drive. I went in to order cupcakes, cake, and balloons for today, ordering yellow (children’s cancer color) and grey (brain cancer) colored icing. One of the bakery ladies tracked me down a couple of aisles over and said to watch out tomorrow for a green sticker, as they were going to make Joshua’s cake a free item. So thank you, Bakery Ladies and King Soopers!


September 21

6 radiation appointments to go. 

Joshua was supposed to finish this week, but a machine out of order and Labor Day tacked on 2 more days so next Monday the 28th will be the new final date. 

Then it’s some more of that sitting and waiting that we’ve become so irritated with for a new MRI on October 26th. It’s going to be a long, long month waiting to see if the radiation/chemo/cetuximab combo has halted the tumor growth.  

Obviously, our preferred outcome is ‘yes, yes it did’ and that’s all she wrote on the whole issue of having a brain tumor. But, being realistic folks, we are planning for something in the middle of best and worst case scenarios. I think to take any other view would either be a bit reckless or alternatively, rather fatalistic.

Had a nice day for taking a jaunt up in to the mountains with PopPop yesterday. The trees are starting to turn a startling shade of yellow, but only the barest hints of red for the moment. We had a nice lunch at Breckenridge Brewery and completed the loop by heading home via FairPlay – not my wisest navigating decision since we ended up in bumper to bumper traffic up the Kenosha Pass. 


September 13

It’s been a bit of a busy week, with Aunty Tania leaving, PopPop arriving, Tony leaving for Aussie for work and Labour Day making for a short week.

We did manage to finish the week with a high note by getting to complete an Bucket List item – Riding in a Lamborghini around a racetrack!

More pics to come (sorry about the glare, this is a pic of the official pic 🙂 )

lambo ride



September 5.2

This morning Joshua and Arianna met up to do something a little different.

Arianna’s family lost their patriarch, Terry, 10 years ago today – to the same type of tumor Joshua is currently fighting. Today, Arianna wanted to shave off her hair in recognition of losing her grandad, and in honor of someone fighting cancer today. Joshua joined her in her journey.

Here are some pictures:









all done


September 3

Screen Shot 2015-09-03 at 8.54.19 PMJoshua is really starting to feel the effects of his radiation and chemo treatments. He went to school Monday before his clinic visit/infusion/radiation, but has been feeling really knocked about since and hasn’t been back. We are hoping he feels well enough to go tomorrow. He’s well enough to do the work, but not quite feeling up to the attending thing. Plus he’s feeling run down, beaten up and a bit worried about getting sick from other kids.

We might be at the point of figuring out how to do this at home for the next month or two, I think.
This head cold/sinus thing Joshua’s had going on hasn’t helped. Imagine how crappy you feel with a head cold or major allergies going on – I can’t even imagine what he’s feeling like when essentially he’s being poisoned to kill the cancer in his brain.

Screen Shot 2015-09-03 at 8.55.11 PMWe had the preliminary shots come back from our family photos. We’ve not quite decided what to order yet – these are just screen grabs of the untouched images for some color 🙂