Joshua was given a Joy Jar when at his infusion today. What a great idea for the kids who have to spend so much time sitting, waiting for infusions to run.
This week marks the start of plan F. Carboplatin and Etoposide chemotherapy. It’s been shown to be somewhat effective in the adult population over in CO University Oncology. So, since the ‘easier’ option (Gemcitabine) became the worst option, the harder option it is!
We also had a box of ’emergency’ supplies arrive from NZ – Thank you so much Tracey-Lee! These will be very useful during all the hospital visits.
Somewhere along the way the website got all fubar’d up. I have since borked it entirely in my efforts to fix it. Here’s hoping I can figure out how to get all my posts back!
Meanwhile little note to myself so i can go catch us up:
March/April – NZ make-a-wish trip
April – New MRI – new tumor growth, new radiation
June – horseback riding with the Douglas County Mounted Police
August – tattoo.
September/October – new port replacement, found a blood clot,
October – new MRI new tumor growth and new tumors found
November – new chemo regime
John and Doris arrived from NZ today.
They will be here for a couple of weeks to spend some time with Joshua and to help as they can to settle in to the new house!
Turns out Joshua is allergic to his Chemotherapy plan. Like 1 in 1000 (or more) type reaction. Temps over 104f/40c for days in a row and the poor kid looks like an unhappy puffer fish!
After a week of daily saline infusions, then a night in hospital, Gemcitabine is definitely off the treatment plan. Which means we’re going to have to find a plan F (or G maybe? I’ve lost count)
Apparently the Leaves and the Chair and Joshua were colluding…