Nov 29

Joshua was given a Joy Jar when at his infusion today. What a great idea for the kids who have to spend so much time sitting, waiting for infusions to run.

This week marks the start of plan F. Carboplatin and Etoposide chemotherapy. It’s been shown to be somewhat effective in the adult population over in CO University Oncology. So, since the ‘easier’ option (Gemcitabine) became the worst option, the harder option it is!

We also had a box of ’emergency’ supplies arrive from NZ – Thank you so much Tracey-Lee! These will be very useful during all the hospital visits.

 

11.11

Somewhere along the way the website got all fubar’d up. I have since borked it entirely in my efforts to fix it. Here’s hoping I can figure out how to get all my posts back!

 

Meanwhile  little note to myself so i can go catch us up:

March/April – NZ make-a-wish trip

April – New MRI – new tumor growth, new radiation

June – horseback riding with the Douglas County Mounted Police

August – tattoo.

September/October – new port replacement, found a blood clot,

October – new MRI new tumor growth and new tumors found

November – new chemo regime

 

 

Nov 11

Well.

Turns out Joshua is allergic to his Chemotherapy plan. Like 1 in 1000 (or more) type reaction. Temps over 104f/40c for days in a row and the poor kid looks like an unhappy puffer fish!

After a week of daily saline infusions, then a night in hospital, Gemcitabine is definitely off the treatment plan. Which means we’re going to have to find a plan F (or G maybe? I’ve lost count)