Mar 13

So day 4 at Hospice.

Joshua is, for the want of a better word, comatose. We’ve had no alert reaction since Friday night when the Scott’s brought William and Aiden to say goodbye. Julia & Stace had a couple of open eye moments on Saturday when they visited.

My heart feels big knowing my son has friends with big hearts who wanted to say goodbye in person. That’s a tough, tough thing to do – I can attest to having moments where being in the room seems to hard for me.

He’s having moments of verbalization with a hand to his forehead so we’re increasing pain medication again today. Between the tumors, the hydrocephaly and Joshua’s natural high pain threshold, I can’t even imagine how painful it must be to make him vocalize.

We can only hope that today he manages to let all the pain go.